National Eating Disorders Awareness Week 2015

National Eating Disorders Awareness Week 2015: The Importance Of An Early Intervention:

Signs of disordered eating aren’t always obvious, Health reported. Subtle insecurities, excessive exercise, and feeling shy or self-conscious about eating in public are all warning signs a loved one may have a problem.

There are physical symptoms, too, apart from dramatic weight loss. According to Health, “people who have been depriving their bodies of nutrition for extended periods of time often develop soft, downy body hair — almost a thin film of fur — on their arms and other parts of the body.” It’s a symptom of starvation and the body’s attempt at keeping itself warm, Dr. Cynthia M. Bulik, author of The Woman in the Mirror: How to Stop Confusing What You Look Like with Who You Are, told the magazine.   

That said, feeling cold is another result of decreased nutrition and body fat. Though there’s no clear-cut way to spot a developing eating disorder. 


 

There’s nothing mild or cute or girly or white about having an ED: 10 Things I Wish People Understood About Eating Disorders:

1. Eating disorders do not discriminate.

2. There are more than two eating disorders.

Anorexia nervosa, bulimia nervosa, orthorexia, yogarexia, binge eating disorder, EDNOS, and more.

3. Eating disorders are mental illnesses with physical side effects.

…At the end of the day, eating disorders aren’t really about food. They’re so much more complicated than that. And when you try to simplify them, you really do a disservice.

In other words, sending your ED or ED-recovery friend pictures of food, recipes, or “encouragements” to “just eat” are not recovery, do not help, and are a sign that actually you don’t know what the fuck you’re doing or talking about. If you have an ED friend, please check out NEDA’s site before you talk to her or him or them.

4. Eating disorders do not determine your body type.

5. Similarly, your body type doesn’t determine having an eating disorder.

6. Eating disorders are not a choice.

…Eating disorders choose you. And as such, giving “advice” like “Just eat!” really isn’t helpful.

You can’t tell a depressive to just “cheer up.” You can’t tell someone with an anxiety disorder to just “relax.”

7. Eating disorders are not diets.

8. Recovery is a long, hard process.

9. Recovery doesn’t look the same for everyone.

10. Eating disorders matter.


MyBodyScreening.org—are you at risk for an eating disorder? [I am at risk for disordered eating. But I knew that, mostly, already.]


And because it merits saying again and again, EDs are not confined to white college girls:


And recovery? 5 Common Questions About Eating Disorder Recovery Answered

Look around this week. Does someone need your understanding and support?


 

Shit—now you fucking tell me. 

OSFED stands for “Other Specified Feeding and Eating Disorders” and is a subclinical categorization to describe eating disorders that do not meet all of the required qualifications of anorexia nervosa, bulimia nervosa, and binge-eating disorder, as recognized by the Diagnostic Statistical Manual (DSM).

Diagnosing these eating disorders requires a specific list of symptoms. If you only have some of the symptoms, you don’t get the official diagnosis.

For example, a bulimia diagnosis requires that a person both binge eats and purges their food. So eating a normal-size meal and throwing it up doesn’t qualify as bulimic, even though it’s clearly an unhealthy eating behavior. Similarly, people may exhibit all the symptoms of anorexia but not be far enough below a healthy weight to meet an official diagnosis.

The Most Common Eating Disorder Is One You’ve Probably Never Heard Of. Buzzfeed, 2/24/15.

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“he doesn’t belong.”

Rudy Giuliani Reportedly Says Obama Doesn’t ‘Love America.’ TPM, 2/19/15.

Bobby Jindal On Whether Obama Loves America: It’s ‘Immaterial.’ TPM, 2/19/15.

Rand Paul Has No Comment On Whether Obama ‘Loves America.’ TPM, 2/20/15.

Scott Walker: ‘I Don’t Really Know’ Whether Obama Loves America. TPM, 2/21/15.

Erickson: I Don’t Think Obama Is A Christian. TPM, 2/21/15.

Scott Walker Says He Doesn’t Know If Obama Is Christian. TPM, 2/21/15.

History rolls though every page of [Orlando] Patterson’s Slavery and Social Death. “Slavery has existed all over the world,” he says, even if many Americans imagine it was unique to the antebellum South. “I asked if there were any common attributes to slavery that differentiate it from other forms of oppression, like serfdom,” he says. “What I came up with is that the fundamental feature of being a slave is that slaves are socially dead—both metaphorically and literally. They have no recognized legal existence in the society. They do not belong to the community, because they belong only to the master, and exist only through the master. I use the concept of natal alienation: they have no rights at birth. This doesn’t mean slaves don’t have communities of their own—they did have a slave life, a slave village. But in the eyes of non-slaves they do not belong, they are non-citizens. So after the United States abolished slavery, one of the first things they had to do was to amend the Constitution to make slaves citizens!

“The idea of social death became very powerful, very useful, especially in explaining what happens after slavery is formally ended,” he continues. “For example, Southern Americans, and Americans generally, found it so hard to accept black Americans after slavery was abolished. The culture of slavery still persisted, which is the idea that ‘you do not belong.’ They were nobodies; people were horrified at the idea that they could vote, like citizens. It even lingers to this day. What is the thing people who don’t like Obama say? They try to make out that he doesn’t have a birth certificate—that he doesn’t belong. Even a black president does not belong!” [emphasis added]

Craig Lambert. The Caribbean Zola. Harvard Magazine, November-December 2014.

Rudy Giuliani questioned how much,or even if, President Obama loves America.Maybe he thinks he loves it 3/5 as much as Giuliani & his pals 

— Steve Cohen (@RepCohen) February 20, 2015

Dem Rep: Giuliani Thinks Obama Loves America ‘3/5 As Much’ As He Does. TPM, 2/20/15.

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Yes/No

Yes, you may have seen me at some parades, especially during the day the first weekend and the second Saturday. 

No, I am not “feeling better.” “Feeling better” is a fucking tease. AS in general is fairly miserable. Even if my pain drops a point or 2, I’m still compromised, exhausted and uncomfortable. The difference between 8 and 6 is real but that doesn’t mean 6 is any fucking fun.

And yes, you did see me at Muses.

Yes, I had some people over and cooked. It was joyful. I made three king cakes this Carnival season, each one a crowd-pleaser and talked about long afterwards.

No, I’m not “doing better these days.” I can’t wait until “better” or “those days” to have some joy in my life, to enjoy one of my favorite times of year, to see people I love to see and never do because I am sick and they are not [or they also are], to wear a tank top on a sunny day, to get a new tattoo [or 3].

“Chronic” means every day, every single day, every single fucking day. Pain-wise, this is day 2226 for me.

Comparative Pain Scale, 0-10

Comparative Pain Scale, 0-10

As a PDF.

I generally live between 7-8 with occasional journeys to 9 and 9.5. I rail against antidepressants but “have” to take them because of that whole “severe personality change” thing—in my case, that “change” is depression, then depression with irritability, then depression with near-catatonic despair. 

So no, I can’t wait until I’m “better,” whatever the fuck that means in terms of AS, to do __. The list of things I don’t do will always be longer so don’t let the short list fool your ass. An outing or physical expenditure doesn’t mean I’m “better” or “cured.” It means I’m on an outing or expending some physical energy because I want.

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“Allowing people to suffer with unmanaged pain is immoral and unethical”

Consumer Pain Advocacy Task Force (CPATF)

Who We Are & What We Believe
Formed in 2014, the CPATF is a coalition of 16 consumer organizations working to improve the well-being of those living with pain. With decades of combined advocacy experience, we know first-hand the hardships of people living with pain, and how critical a national action plan that addresses this complex issue is.

Integral to our collaboration, we unite with the following beliefs, which guide our collective work:

  • Chronic pain is a real and complex disease that may exist by itself or along with another medical condition
  • Chronic pain is an unrecognized and under-resourced public health crisis with devastating personal and economic impact
  • Effective pain care requires access to a wide range of treatment options
  • Allowing people to suffer with unmanaged pain is immoral and unethical

Quick Facts, CPATF, 2015

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Chronic Pain Is Not Criminal (Really!); A Better Way to End Addiction No One Wants to Use

My chronic pain isn’t a crime. Boston Globe, 2/3/15. HT: Jenni Prokopy at ChronicBabe FB feed

My latest pain contract, presented as a requirement for obtaining care, included a demand that I appear, whenever ordered, before any practitioner in the health maintenance organization to which I belong, within an hour’s time, with my medication bottle in hand.

For a pill count.

How, exactly, is that supposed to work?

I have a job, a family, a life. I can’t carry around a bottle of prescription narcotics; the contract deems loss, theft, or damage as suspicious activity, and the pills would not be replaced. So I would have to interrupt teaching, go home, retrieve the pills, and report to a practitioner.

Within an hour.

I would rarely be able to do this, and when I could, doing so within an hour would usually be impossible. But in failing to comply, I would risk the revocation of my “pain medication license.”

Again, abuse of prescription pain medication is a serious problem; people are dying. But a vastly larger group of us are living — in unremitting pain, in the face of which we do the best we can to remain productive and independent, to benefit, rather than burden, our families and society at large. Most of us have accepted ever-more-onerous restrictions, no matter how humiliating — urination on command, guilty-until-proven-innocent — regardless of how they clash with American values and medical ethics.

Do we have a choice?

Well, sadly . . . yes. Street narcotics. They are broadly available, and they’re less expensive. There’s no oversight, and no humiliating urinalysis.

But is this the direction we want to go?


The Wonder Drug. Slate, 2/9/15.

Late last month, though, came an entirely new explanation for Suboxone’s limited reach in many heroin-wracked parts of the country. Following a year-long investigation, Huffington Post released a powerful multimedia package, edited by Ryan Grim and centered on a 20,000-word article by reporter Jason Cherkis that described a whole other source of resistance to the medication: the drug-treatment industry’s self-interested bias against a medical approach to treating opiate addiction. Cherkis focuses on Kentucky, where, despite an especially large spike in heroin deaths, the main publicly funded network of treatment programs remains insistently—and infuriatingly—wedded to an abstinence-based, 12-step approach to addiction recovery, despite the programs’ high drop-out and failure rates and the heaps of research showing that heroin dependence is so difficult to overcome that many addicts have far better prospects if they taper off the drug for months or years using a “maintenance” medication like methadone or Suboxone. Kentucky, reports Cherkis, “has approached Suboxone in such a shuffling and half-hearted way that in 2013, just 62 or so opiate addicts treated in all of the state’s taxpayer-funded facilities were able to obtain the medication that doctors say is the surest way to save their lives. Last year, the number fell to 38, as overdose deaths continued to soar.”

Cherkis introduces readers to one after another set of parents mourning children in their 20s who dutifully went through medication-free 12-step programs, only to relapse and fatally overdose soon after their release (a time when addicts are particularly vulnerable to overdosing, because their tolerance has decreased during detox). And he introduces us to one after another anti-science obstructionist in the local treatment industry and judicial system, where judges insist that addicts can only avoid jail time for a stay in treatment if they avoid Suboxone. There is the intake supervisor for one treatment center who, when asked if Suboxone might’ve saved a former client who fatally relapsed, shrugged and responded: “Could have. But it’s not sobriety. It’s being alive. But you’re not clean and sober.” There is the state senator in northern Kentucky—which is being hit particularly hard by the heroin wave—who compares using Suboxone to being “in bondage.” And there is the judge who oversees Kenton County’s drug court, who won’t allow Suboxone for defendants’ treatment plans. When presented with the data that shows how risky it is to detox without medication, he says, “I’m not an expert on what works and what doesn’t work.” A sign was recently posted outside a Kenton County courtroom addressed to all “Suboxin users,” warning that “IF YOU WANT PROBATION OR DIVERSION AND YOUR ON SUBOXIN, YOU MUST BE WEENED OFF BY THE TIME OF YOUR SENTENCING DATE.”

 

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“in Louisiana the poverty rate increased more than in most states over that time”

6. Louisiana
Middle income growth 2009-2013: -4.9%
Fifth quintile income growth 2009-2013: 1.0%
Fifth quintile share of income: 51.9%
Middle class household income: $44,442 (8th lowest)

The widening income gap in Louisiana does not bode well for the state’s poorest residents. The poorest 20% of Louisiana households earned $8,851 on average in 2013, lower than in every state except for Mississippi and a substantial decrease from 2009. In addition, the combined incomes among the poorest fifth of households accounted for 2.8% of the state’s total income in 2013, down from 3.2% in 2009, one of the largest drops nationwide. Meanwhile, the wealthiest 20% of Louisiana households held nearly 52% of the state’s income in 2013, higher than the comparable national figure, and also a substantial increase from 2009. While the widening income gaps in the states where the middle class is suffering did not always mean a higher poverty rate among residents, in Louisiana the poverty rate increased more than in most states over that time. By 2013, nearly one in five Louisiana residents lived in poverty, one of the highest poverty rates in the country.

States Where the Middle Class Is Dying. 24/7 Wall Street, 1/22/15.

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“a federal prosecutor who doesn’t give a fuck”

Preet!

The Most Dangerous Man In American Politics. BuzzFeed News, 1/22/15.

His frontal assault on the open secrets of New York political power has been a genuine shock to the state’s politics and even to its press, who missed the secret payments that appear to be at the heart of the reported Silver indictment. The process began last year, when Andrew Cuomo cut a particularly crude variety of the deal on which most statehouses operate: He shut down an ethics investigation into the state legislature in exchange for legislative support for his policies. His gambit became the subject of an excellent Times investigation — and then, to everyone’s surprise, Bharara essentially reversed Cuomo’s move, using his expansive power to seize the evidence Cuomo’s Moreland Commission had gathered and turn it over to his own investigators.

Silver’s indictment cites the Moreland Commission files, and notes that Silver had blocked the commission from investigating lawmakers’ outside income before shutting it down. Bharara’s move has already done massive damage not just to Silver, whose spokesman didn’t respond to an email Thursday morning, but also to Cuomo, implicated by extension in a cover-up.

Now Bharara is at war, and should he win (and even if he loses — some of Giuliani’s Wall Street prosecutions fell apart), he is now an obvious candidate for any of the major New York political offices. And as Mike Bloomberg’s allies, in particular, look for a new challenger to Mayor Bill de Blasio, the prosecutor who took on his own party will likely be the first man they call.

Bharara was, briefly, among the figures mentioned last fall for another top job, attorney general of the United States, replacing a loyalist who served as President Obama’s “heat shield.” Obama went instead with the U.S. attorney for the Eastern District of New York, Loretta Lynch, a well-regarded prosecutor who has not shown the same eagerness to indict prominent Democrats. Bharara, with two more years in office, is that particularly dangerous and rare political figure: a federal prosecutor who doesn’t give a fuck.

 

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“because it’s Carnival time”

Orleans parish, Uptown route unless noted. For all Carnival parades, routes, and details, click here.

Sat., Jan 31

Krewe du Vieux 6:30pm
Krewe Delusion follows

Fri., Feb 6

Krewe of Cork 3:00pm, French Quarter
Krewe of Oshun 6:00pm
Krewe of Cleopatra 6:30pm

Sat., Feb 7

Krewe of Pontchartrain 1:00pm
Krewe of Choctaw follows
Krewe of Freret follows
‘tit Rex 5:00pm, Marigny
Knights of Sparta 6:00pm
Krewe of Pygmalion 6:45pm
Krewe of Chewbacchus 8:00pm, Marigny

Sun., Feb. 8

Krewe of Carrollton 12:00pm
Krewe of King Arthur and Merlin follows
Krewe of Alla follows
Krewe of Barkus 2:00pm, French Quarter

Wed., Feb 11

Krewe of Druids 6:30pm
Krewe of Nyx 7:00pm

Thu., Feb 12

Knights of Babylon 5:45pm
Krewe of Muses 6:30pm
Knights of Chaos 6:30pm

Fri., Feb 13

Krewe of Hermes 6:00pm
Krewe d’Etat 6:30pm
Krewe of Morpheus 7:00pm

Sat., Feb 14

Krewe of Iris 11:00am
Krewe of Tucks 12:00pm
Krewe of Endymion 4:15pm, MidCity

Sun., Feb. 15

Krewe of Okeanos 11:00am
Krewe of MidCity 11:45am
Krewe of Thoth 12:00pm
Krewe of Bacchus 5:15pm

Mon., Feb. 16

Krewe of Proteus 5:15pm
Krewe of Orpheus 6:00pm

Tue., Feb 17

Krewe of Zulu 8:00am
Krewe of Rex 10:00am
Krewe of Elks Orleans follows
Krewe of Crescent City follows

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Ankylosing Spondylitis: Myths from Drugs.com

If your rheumatologist or GP spouts any of this nonsense, look for another doctor; if you have no other options, arm yourself with research and bring a friend to your appointment for moral support and backup. There are many doctors, even rheumatologists, who firmly believe these, and other, off-base things. I suspect AS is not really “rare” but simply undiagnosed because of these myths, and other stupid-ass shit, like “only men between the ages of 18-35 get AS“:

1. Ankylosing Spondylitis (AS) Only Affects the Back

No, not at all. This is why many women are diagnosed with fibromyalgia [because they are female, of a certain age, and complain of pain, fatigue and sleep problems] since some doctors think neck, hand, foot, and other pain have nothing to do with AS. Instead of asking more questions, following up or delving deeper, many women are diagnosed with FM and dismissed, maybe with a prescription for Lyrica or Cymbalta.

2. Ankylosing Spondylitis Primarily Occurs in the Elderly

No. It may seem so because elderly people are more likely to show obvious signs of fusing, like a curved spine. You’d think the goal would be to prevent that kind of end-stage damage. But it can take 7-10+ years to get the right diagnosis, possibly longer if you are female. Too many doctors think that fusing is a symptom, rather than the end stage of a disease process.

3. Ankylosing Spondylitis is Easily Curable

If it were, do you think my black ass would be in pain all the time and using a motherfucking cane?

4. Diagnosis of Ankylosing Spondylitis Requires Many Tests

Though we’d all like to think that “tests” provide all the answers anyone needs, that’s a dangerous oversimplification. Some doctors will insist that only people who test positive for the HLA-B27 gene can have AS but there are many people with the HLA-B27 gene who do not have and never get any symptoms of AS. The opposite is also true, that you can have AS and even fuse though you do not carry that gene. Diagnosis takes time, a thorough medical history, patience and, sometimes, sophistication. You can’t decide if it’s AS from one round of tests and a 15-minute office visit, especially if the doctor doesn’t think patient input is needed.

5. Drugs Are the Only Way to Treat Ankylosing Spondylitis

Generally speaking, drugs aren’t the “only way” anything can be treated. No responsible doctor will tell you that all you have to do for your Type I diabetes is take insulin. Getting a bypass won’t help much if you do not do something like quit smoking or start some kind of exercise. There are things that you can do to ease your symptoms, reduce your suffering, and maintain your strength, flexibility and range of motion. See #6 and the references below.

6. People with Ankylosing Spondylitis Should Avoid Exercise

BWAH-HAH-HAH! Do this if you want to be bedridden and disabled in a year or 2. Though high-impact sports like rugby may no longer be the best choice for you, there are lots of things you can do and that are helpful and feel good: When you have a chronic illness, you need to take care of yourself well since your body is already under a great deal of stress.

Yeah, chronic illness is stressful. If you don’t know that, I’m glad you’re a healthy person.

My ASers, swimming, walking, hatha yoga, stretching, tai chi, water aerobics [especially in a warm pool, and 86º is not the kind of warm I mean; think “therapy pool,” about 91-94º], and bicycling are all good choices but be sure it’s something that works for you, that you don’t overdo it, and that you are always safe. People like us can fall down and hurt something, badly. [No insurance company will pay to monitor your AS with regular MRIs so the first time you know bones have started to fuse and become brittle is after you fall and break some things.] And if you have never exercised, start slowly, gradually, gently. You don’t have to be in “perfect” physical shape tomorrow, next year or ever. Play this for the long game, not next week. And don’t forget pleasure, joy. Stretch outside in the sun. Walk while your kids run or roller skate.

Scroll down to Tables 1 and 2 in this post for recommendations for AS patients.

7. Drug Treatment for Ankylosing Spondylitis is Always Expensive

Always? No. NSAIDs can be economical. Biologics can be very expensive but many drug manufacturers have assistance plans to help with costs, whether you have insurance or not.

8. Ankylosing Spondylitis Leads to Severe Disability

I’m not sure why the picture with this slide is of someone smoking a cigarette.

No, AS is not a death sentence. If you take decent care of yourself and have a supportive medical team [“team” meaning your PCP/GP, rheumatologist, pain management doctor, physical therapist, psychiatrist, acupuncturist, etc.], you can avoid “severe” disability.

Your life will change with AS but it doesn’t have to end. Some people do have more severe forms of AS but it’s best not to assume you will become one or that you are doomed, doomed, doomed. It sucks but I don’t feel, most days, like the walking dead…..

9. There is Little I Can Do to Help Myself

You should know right away this one is total bullshit. There is always something you can do, even if it’s just advocating for yourself to get the care you need. You can exercise or stretch, get physical therapy, find a therapy pool, soak in a hot tub, eat well, find ways to reduce stress, and maintain a quality of life that fulfills, and fills, you. Nothing is hopeless. Not even death because then at least pain and suffering end.

10. If NSAIDs Don’t Work, My Treatment Options Are Limited

What does “don’t work” mean? For example, I take a NSAID daily, and did before my AS diagnosis came, but I still need a cane, exercise, heat, a biologic, a psychiatrist, etc. Without the NSAID, the peripheral arthritis [part of AS, not separate] locks up my fingers, feet, and toes and my spine, SI joints, jaw, wrists, ankles, etc. get worse within 24-48 hours. Using a NSAID can cut down on the amount of pain medicine you need daily. [Pain medication is a whole other bucket of turds to wade through.] Just because NSAIDs don’t stop AS cold doesn’t mean they don’t work.

And there are other options if you cannot take NSAIDs. Finding them may take some patience, trial and error, and a doctor who’s willing to work with you as a team. Even if there’s no simple answer, being heard makes a difference.

11. Aren’t TNF Blocker Side Effects Dangerous?

Have you looked at the side effects of any prescription drugs? Antidepressants can cause depression and mood swings, suicidal thoughts and mania. Aspirin has potential side effects. Heart disease is strong in my family so I avoid COX-2 inhibitors. There are some side effects that look very, very scary but they are truly rare. If you have certain kinds of risk factors, just like with any other drug, TNF blockers/biologics may not be the best option for you.

12. TNF Blockers Are All the Same, So It Does Not Matter Which One I Use

Many of the biologics/TNF blockers used for AS were developed for and work best for rheumatoid arthritis (RA). Why one works better on person A than person T isn’t clear. Trial and error is required. And sometimes a biologic works for months, even years, then loses its effectiveness for you. Then you need to try another. Some people find that none of them help or the side effects are too serious [see #11].

13. TNF Blocker Injections Rarely Cause Skin Reactions

No, they do. Not every time, not every person, but skin reactions do happen. Because…well, shit happens, boo.

14. TNF Blockers Can’t Help Slow Damage in AS

I’ll quote from the slide here because the research I’ve seen seems inconclusive:

Several studies have suggested no effect of TNF blockers to slow disease progression in AS. However, a 2013 study (Haroon) suggests that TNF blockers can reduce progression of spinal damage as seen on an X-ray by up to 50%. Researchers state that treatment needs to be started early and continued long-term. In the study, a benefit was seen at 4 years. Compared to patients who started treatment earlier, those who waited 10 or more years to begin TNF blockers were twice as likely to progress. In this study, NSAID use did not have a significant effect on progression; but patients may still need to use NSAIDs for pain control.

One 2013 study is not enough to say that biologics/TNF blockers “reduce progression” [not “stop” but “reduce,” slow down], meaning the fusing of the spine and other joints. Damage great enough to be seen in X-rays indicates a good amount of disease progression, beyond what MRIs can pick up earlier in the disease process.

If anyone, doctor or whoever, tells you that biologics “cure” AS or that if you take biologics or NSAIDs that “you will never fuse,” raise an eyebrow and approach everything this person says with a good dose of critical thinking and analysis.

15. If TNF Blockers Don’t Work, There Aren’t Any Other Options

There are other options. There are always other options. Don’t let yourself get blocked in a corner by someone else’s ignorance or laziness. Or prejudice.

16. There is No Way I Can Afford TNF Blockers

See #7. Often, your rheumatologist’s office will know of drug manufacturer programs to reduce your costs, and private insurance will cover biologics if you follow their dance steps. It is true that co-pays can be $50-100 or more but you don’t take biologics every day. And if they help, that out-of-pocket cost is worth it, especially if it means you can go back to work and enjoy your family and go out with your friends on a regular basis.

I fucking wish.


More, more, more—with AS or any chronic, and especially any chronic invisible, illness, knowledge and education are crucial.

GBS on AS

The Ankylosing Spondylitis Support Forums: Kick AS

Braun, J, et al. “2010 update of the ASAS/EULAR recommendations for the management of ankylosing spondylitis.” Annals of the Rheumatic Diseases 70 (2011): 896–904.Academic Search Complete. Web.

Brophy, Sinead, et al. “Fatigue in Ankylosing Spondylitis: Treatment Should Focus on Pain Management.” Seminars in Arthritis and Rheumatism 42 (2013): 361-367. Academic Search Complete. Web.

Davies, Helen, et al. “Patient perspectives of managing fatigue in Ankylosing Spondylitis, and views on potential interventions: a qualitative study.” BMC Musculoskeletal Disorders 14 (2013):163. Web.

Facebook has a number of AS support groups. Keep in mind that some online support groups are dominated by those with more severe illness, or AS compounded by other conditions and illnesses. If it’s bringing you down, take a break, find another group, or start your own.

Feldtkeller, Ernst, Gudrun Lind-Albrecht, and Martin Rudwaleit. “Core set of recommendations for patients with ankylosing spondylitis concerning behaviour and environmental adaptations.” Rheumatology International 33.9 (2013): 2343–2349. Academic Search Complete. Web.

Hill, Hilary, Alan G. S. Hill, and Julia G. Bodmer. “Clinical diagnosis of ankylosing spondylitis in women and relation to presence of HLA-B27.” Annals of the Rheumatic Diseases 35 (1976): 267-270. Academic Search Complete. Web.

Lorig, Kate, and James Fries. The Arthritis Helpbook: A Tested Self-Management Program for Coping with Arthritis and Fibromyalgia. Cambridge, MA: Da Capo, 2006. Print.

O’Shea, Finbar, David Salonen, and Robert Inman. “Editorial: The Challenge of Early Diagnosis in Ankylosing Spondylitis.Journal of Rheumatology 34.1 (2007): 5-7. Web.

Poddubnyy, Denis. “Improving Diagnosis of Ankylosing Spondylitis and Spondyloarthritis in General.” International Journal of Clinical Rheumatology 6.6 (2011): 655-668. Medscape. Web.

Reveille, J. “Epidemiology of Spondyloarthritis in North America.” American Journal of the Medical Sciences 341.4 (2011): 284–286. National Center for Biotechnology Information, U.S. National Library of Medicine. Web.

Slobodin, Gleb, et al. “Recently diagnosed axial spondyloarthritis: gender differences and factors related to delay in diagnosis.” Clinical Rheumatology 30 (2011): 1075–1080.Academic Search Complete. Web.

Spondylitis Association of America

van der Horst-Bruinsma, Irene, et al. “Female patients with ankylosing spondylitis: analysis of the impact of gender across treatment studies.” Annals of the Rheumatic Diseases 72.7 (2013): 1221-1224. Academic Search Complete. Web.

Weisman, M. Ankylosing Spondylitis. Oxford: Oxford UP, 2011. Print.

 

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Discuss

Understanding our ethics around sexuality tells us much about who we are as people (137).


Becky Thompson. Survivors on the Yoga Mat: Stories for Those Healing from Trauma. Berkeley, CA: North Atlantic Books, 2014. Print. 

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